NCRI Living With and Beyond Cancer Group
The LWBC Group aims to improve the quality, and increase the quantity, of multidisciplinary research into outcomes for people affected by cancer at all stages of disease; and for their carers. The remit of the LWBC Group will cover all cancer types and patients at all stages of illness, including those without a current histological diagnosis. It will include all aspects of patient and carer wellbeing. It will cover physical, psychological, social, spiritual, cultural, and financial consequences of cancer illness.
The NCRI LWBC Group Objectives are as follows:
- Raise awareness of research into outcomes for people with cancer at all stages of disease, including longterm survivorship and at end of life; and for their carers.
- Stimulate new studies using a range of current and innovative approaches, into improving and measuring outcomes.
- Design and secure funding for research supporting our aim.
- Collaborate with other research groups both in the UK and abroad to achieve our aim
- Seek new sources of funding for research meeting our aim.
- Increasing outputs of the Group with respect to publications and presentations.
- Advise and support other researchers in the NCRI to design their own studies into measuring and improving patient outcomes.
Ways of Working:
The group will work as Executive Group and Workstreams. The Executive Group holds a strategic role, providing oversight of the research landscape and proactively identifying opportunities for the work of the Group. The Workstreams are responsible for identifying new opportunities and developing new trials within their focus areas; reporting to the Executive Group regarding any changes in the research landscape and providing reports on their progress. The workstreams are as follows; Acute Care and Toxicities, Advanced Disease and End of Life Care, Late Consequences, MUO/CUP and Methodology. You can find more information about the remit and strategies of the workstreams below.
The LWBC Group is the outcome of restructuring and bringing together of several of the NCRI CSGs in order to help address the overlapping areas of remit between NCRI Psychosocial Oncology and Survivorship (POS), Supportive and Palliative Care (S&PC) and Primary Care (PC) CSGs. This is to ensure a more efficient and aligned approach moving forward. The work of the NCRI Cancer of Unknown Primary (CUP) and Acute Oncology Working Parties has also been encompassed into this new cross-cutting structure.
Professor Sam Ahmedzai and Professor Galina Velikova
Please see below the Groups strategies for 2020-2021
*COMING SOON* Click here to see the MUO/CUP Workstream Strategy
List of Group Members
- Professor Sam Ahmedzai(Emeritus Professor, Sheffield)
- Professor Galina Velikova (Medical Oncologist, Leeds)
- Dr Kai-Keen Shiu (Medical Oncologist, London)
- Dr Gillian Prue(Senior Lecturer in Chronic Illness, Belfast)
- Dr Pauline Leonard (Medical Oncologist, London)
- Professor Sara Faithfull (Professor of Cancer Nursing Practice, Surrey)
- Professor Annmarie Nelson(Professor of Palliative and Supportive Care, Cardiff)
- Dr Derek Kyte (Lecturer in Health Research Methods, Birmingham)
- Mr Jim Elliott (Consumer Representative, Pembrokeshire)
- Chair: Dr Kai-Keen Shiu
- Consumer Representative: John Symons
- Consumer Representative: Janice Rose
- Trainee Representative: Alicia- Marie Conway (Clinical Fellow, University of Manchester)
- Claire Mitchell (Medical Oncologist, Christie Hospital NHS FT)
- Lucy Walkington (Medical Oncologist, Weston Park Cancer Centre)
- Sally Clive (Medical Oncologist, Edinburgh Cancer Centre)
- Richard Wagland (Senior Fellow, University of Southampton)
- Manuel Rodriguez-Justo (Consultant Histopathologist, UCL)
- Antonia Creak (Clinical Oncologist, Sussex Cancer Centre)
- Gillian Knowles (Nurse Consultant, NHS Lothian)
- Ben Taylor (Consultant Radiologist, The Christie NHS FT)
- Co-Chair: Gillian Prue
- Co-Chair: Pauline Leonard
- Consumer Representative: Elspeth Banks
- Louise Carter (Clinical Senior Lecturer, Christie Hopsital NHS FT)
- Tim Cooksley (Acute Medicine Consultant, Christie Hospital NHS FT)
- Chloe Grimmett (Senior Research Fellow, University of Southampton)
- Susan Catt (Research Fellow, Brighton and Sussex University Hospitals NHS Trust)
- Suriya Kirkpatrick (Research Nurse, North Bristol NHS Trust)
- Aidan Cole (Clinical Lecturer and Consultant, Queens University Belfast)
- Tania Kalsi (Consultant Physician, Guys and St Thomas’ NHS FT)
- Andrew Stewart (Consultant Haemotologist, Bristol NHS FT)
- Chair: Sara Faithfull
- Consumer Representative: Julie Wolfarth
- Trainee Representative: Dipesh Gopal (Barts University)
- Trainee Representative: Florien Boele (University of Leeds)
- Peter Donnelly (Kings College London)
- Joshua Turner (Research Fellow, University of Southampton)
- Linda Sharp (Professor of Cancer Epidemiology, University of Newcastle)
- Eila Watson (Supportive Cancer Care Professor, Oxford Brookes University)
- Sara MacLennan (Health Psychologist, University of Aberdeen)
- Rebecca Shakir (Clinical Oncologist SpR, University of Oxford)
- John Radford (Medical Oncologist, University of Manchester)
- Marianne Aznar (Radiotherapy Physicist, University of Manchester)
- Amy Taylor (Radiographer, Sheffield Teaching Hospitals)
- Chair: Ann-Marie Nelson
- Consumer Representative: Susan Restorick-Banks
- Consumer Representative: Margaret Johnson
- Trainee Representative: Donna Wakefield (Palliative Medicine Consultant, Health Education North East)
- Trainee Representative: Lisa Graham-Wisener (Health Psychologist, Queens University Belfast)
- Brooke Swash (Senior Lecturer, Chester University)
- Andrew Dickman (Consultant Pharmacist, Blackpool Teaching Hospital NHS FT)
- Mari Lloyd-Williams (Palliative Medicine Consultant, University of Liverpool)
- Catriona Mayland (Palliative Medicine Consultant, University of Sheffield)
- Lynn Calman (Senior Research Fellow, University of Southampton)
- Andrew Carson- Stevens (Cardiff University)
- Sandra Prew (NIHR)
- Mieke Van Hemelrijck (Cancer Epidemiologist, KCL)
- Chair: Derek Kyte
- Consumer Representative: Jim Elliot
- Trainee Representative: Emily Harrop (Research Associate, Cardiff University)
- Trainee Representative: Debbie Cavers (Research Fellow, University of Edinburgh)
- Nicola Gray (Senior Lecturer, University of Dundee)
- Claire Foster (Professor of Psychosocial Oncology, University of Southampton)
- Sally Wheelwright (Senior Research Fellow, University of Southampton)
- Valerie Shilling (Research Fellow, Brighton and Sussex Medical School)
- Mike Horton (Research Fellow, University of Leeds)
- Peter Hall (Consultant Oncologist, University of Edinburgh)
- Michelle Collinson (Senior Medical Statistician, Leeds Institute of Clinical Trial Research)
- Alexandra Gilbert (Clinical Oncologist, University of Leeds)
- Lynn Calman (Senior Research Fellow, University of Southampton)
MUO/CUP Workstream, chaired by Dr Kai-Keen Shiu
Acute Care and Toxicities, chaired by Dr Gillian Prue and Dr Pauline Leonard
Late Consequences, chaired by Professor Sara Faithfull
Advanced Disease and End of Life Care, chaired by Professor Annmarie Nelson
Methodology, chaired by Dr Derek Kyte
The Workstreams remit covers each of the listed topic areas:
|MUO/CUP Workstream||Acute Care and Toxicities Workstream||Late Consequences Workstream||Advanced Disease and End of Life Care Workstream||Methodology Workstream|
|Acute Oncology Type I||Acute Treatment Toxicities||Late Toxicities||Palliative Care||PROMs|
|Primary Care Pathway||Acute Cancer Toxicities||Psychosocial Aspects||Hospice||Touch Screen/Apps|
|CUP Biology & Therapy||Psychosocial Impacts of Treatment||Primary Care follow-up||Bereavement Care||Quality of Life/ Health Economics|
|Prehabilitation||Primary Care||Output Measures/ Trial Design|
|Primary/Secondary Care Interface||Psychosocial Aspects||Qualitative Research|
|Primary Care Data Linkage|
NCRI LWBC Procedure for Review of Study Proposals
The NCRI LWBC Group aims to improve the quality and increase the quantity, of multidisciplinary research into outcomes for people affected by cancer at all stages of disease. It endeavours to provide advice to other researchers in the NCRI to design their own studies into measuring and improving patient outcomes, or to include high-quality sub-studies in therapeutic clinical trials that focus on patient-centred outcomes alongside clinical outcomes. The LWBC Group has 5 workstreams as detailed above and it is expected that the researchers will contact the relevant workstream(s) early and consider working with them to develop the study proposal, in order to gain maximum benefit from the available expertise. You can see further information about the members and the areas of focus for each workstream to help you judge which workstream to contact. Procedures for formal peer review and feedback on study ideas and proposals are also available.
Procedure for Study Proposals Review
- A Proposal Review and Guidance Meeting is available once a year, as part of the LWBC group annual trials meeting (next meeting March 21). Investigators who have ideas for LWBC research are invited to present their proposals for open discussion and feedback from a panel of experts from the group including a patient representative. The intention of providing this pre-submission peer input is to facilitate successful funding and add value to the proposals. Investigators are asked to submit a proforma (see below) to the NCRI ahead of the meeting. The applications will be reviewed by the LWBC Executive Committee. A formal evaluation and feedback will be provided by the panel.
- A second Proposal Review virtual meeting is available approximately 6 months after the annual trials meeting (approx September). The procedure will follow a similar format to that detailed in number one above, however, the presentations will be done via an online platform (likely Microsoft Teams).
- The LWBC group will endeavour to perform brief reviews of study proposals that due to time pressures do not fit within the twice per year dedicated meetings. We encourage the applicants to allow a minimum of 4 weeks for review and feedback. We require them to use the established proforma, rather than submitting a full-length grant application. These proposals will be reviewed by the chairs of the relevant workstream and other workstream members with expertise in the research area.
Click here to email the group