NCRI Living With and Beyond Cancer Group

To address the overlapping areas of remit between NCRI Psychosocial Oncology and Survivorship (POS), Supportive and Palliative Care (S&PC) and Primary Care (PC) CSGs, a restructure of these cross-cutting Groups has been agreed to ensure a more efficient and aligned approach moving forward. The work of the NCRI Cancer of Unknown Primary (CUP) and Acute Oncology Working Parties has also been encompassed into this new cross cutting structure.

In the new structure an Executive Group and Workstreams will be created, replacing the previous Research Groups and Subgroups. The Executive Group will take a strategic role, providing oversight of the research landscape and proactively identifying opportunities for the work of the Group. The Workstreams will also identify new opportunities and develop new trials within their focus areas; reporting to the Executive Group regarding any changes in the research landscape relating to their area and providing reports on their progress.

Group Chair

Professor Sam Ahmedzai and Professor Galina Velikova Professor Sam Ahmedzai and Professor Galina Velikova

Professor Sam Ahmedzai and Professor Galina Velikova


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List of Group Members

Membership of the Executive Group:

Professor Sam Ahmedzai
(Emeritus Professor, Sheffield)

Professor Galina Velikova
(Medical Oncologist, Leeds)

Dr Kai-Keen Shiu
(Medical Oncologist, London)

Dr Gillian Prue
(Senior Lecturer in Chronic Illness, Belfast)

Dr Pauline Leonard
(Medical Oncologist, London)

Professor Sara Faithfull
(Professor of Cancer Nursing Practice, Surrey)

Professor Annmarie Nelson
(Professor of Palliative and Supportive Care, Cardiff)

Dr Derek Kyte
(Lecturer in Health Research Methods, Birmingham)

Mr Jim Elliott
(Consumer Representative, Pembrokeshire)


Current Workstreams

The following five Workstreams will be initiated:

MUO/CUP Workstream, chaired by Dr Kai-Keen Shiu
Acute Care and Toxicities, chaired by Dr Gillian Prue and Dr Pauline Leonard
Late Consequences, chaired by Professor Sara Faithfull
Advanced Disease and End of Life Care, chaired by Professor Annmarie Nelson
Methodology, chaired by Dr Derek Kyte

Other Information

The Workstreams remit covers each of the listed topic areas:

MUO/CUP Workstream Acute Care and Toxicities Workstream Late Consequences Workstream Advanced Disease and End of Life Care Workstream Methodology Workstream
Acute Oncology   Type I Acute Treatment Toxicities Late Toxicities Palliative Care PROMs
Primary Care Pathway Acute Cancer Toxicities Psychosocial Aspects Hospice Touch Screen/Apps
CUP Biology & Therapy Psychosocial Impacts of Treatment Primary Care    follow-up Bereavement Care Quality of Life/   Health Economics
Prehabilitation Primary Care Output Measures/ Trial Design
Primary/Secondary Care Interface Psychosocial Aspects Qualitative Research
Primary Care Data Linkage


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